The journey of HDSI has just begun with a lot of hope for the future.
Any successful endeavour is possible only by team work of like-minded
people. Though it is initiated by few people, the responsibility to take
it forward lies on all of us who are committed to the cause of HD.
Many of you might want to do it but are not sure of how to do it with your
own busy schedules etc. There is always a way if there is a will. As we expand
our teams, we can find a place for many people who are skilled in any of
the following and probably unskilled can be trained suitably as we evolve.
1. Medical professionals: Doctors, nurses, psychologists, social
workers, physiotherapists, speech/swallow therapists, genetic
counsellors, diagnosticians, clinical researchers etc
2. Mult-Media
specialists to create content and platforms for the spread of awareness on
HD
3. Journalists can cover the work of HDSI and publish articles useful
to HD community
4. Artists, musicians (for fund raising activities
and spreading awareness)
5. Software developers especially web
developers to manage the ongoing needs of website/apps
6. NGO
specialists/administrators to give valuable inputs in running of HDSI
7. Chartered accountants for advising on handling finances
8. Lawyers for legal advice
9. People from rare disease advocacy
groups to work hand in hand for the betterment of people suffering from
rare diseases including HD
